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Needs and Barriers - What are the Views of People With Parkinson's Disease and Their Families? (PD102882)

Presenter(s): Cindy Washington; Robin Baack; Sabiha Parveen, PhD, CCC-SLP; Abby Welke
Course Description

Approximately 1 million people are currently living with Parkinson's disease (PD) in the United States, with more than 60,000 people newly diagnosed with PD each year. Although PD can often be effectively managed by a combination of pharmacological and nonpharmacological options during the earlier stages, many individuals with PD experience progressive disability and require increased support from health and social services. This course describes a study that includes findings from semi-structured interviews with people with PD and their family members (based in Oklahoma, Texas, and Arkansas) about their current unmet needs and barriers to service delivery. In addition, the course discusses some of the future directions and avenues that may benefit the PD community.

This course is a recorded session from the 2022 ASHA Convention Virtual Library (session 5501V).

Learning Outcomes
You will be able to:

  • Identify health care services that people with PD and their communication partners access following a diagnosis of PD
  • Identify some unmet needs and barriers to service delivery that people with PD and their communication partners experience
  • Summarize recommendations and suggestions for more comprehensive and holistic care of people with PD

Presenter Information

Cindy Washington (nonpresenting author) is a Clinical Counselor in the Student Counseling Center at Oklahoma State University. Her areas of interest include eating disorders, LGBTQ issues, trauma recovery, depression, and anxiety disorders. She volunteers in the community to support people living with Parkinson’s disease.

Financial Disclosures:

  • Research was supported by Community Grants Program of Parkinson's Foundation

Nonfinancial Disclosures:

  • Volunteer speaker at the Stillwater, Oklahoma, Parkinson's Group

Robin Baack (nonpresenting author) is a graduate student in the Department of Communication Sciences and Disorders at Oklahoma State University. Her areas of interest include neurogenic communication disorders, especially dementias, aphasias, and Parkinson's disease. She is most interested in learning the best treatment strategies for optimizing functional communication for these populations. Robin is currently working on her thesis, is a NSSLHA member, and plans to graduate with her master's degree in CDIS in May 2023.

Financial Disclosures:

  • None

Nonfinancial Disclosures:

  • Graduate research assistant for Dr. Parveen

Abby Welke (nonpresenting author) is an undergraduate student in the Department of Communication Sciences and Disorders at Oklahoma State University. Her areas of interest include trauma research leading to communication disorders at any age, and speech and language disorders pertaining to children. Specifically, she is very interested in trauma research regarding TBIs and strokes, as well as social communication and receptive-expressive language disorders in children.

Financial Disclosures:

  • None

Nonfinancial Disclosures:

  • None

Sabiha Parveen, PhD, CCC-SLP (presenting author) is an Associate Professor in the Communication Sciences and Disorders Department at Oklahoma State University. Her current research areas include perceptions and community-based programs for people with Parkinson's disease and their families, professional issues, attitudes, and aspects related to scholarship of teaching and learning in communication sciences and disorders.

Financial Disclosures:

  • Research was supported by Community Grants Program of Parkinson's Foundation

Nonfinancial Disclosures:

  • None

Assessment Type

Self-assessment—Think about what you learned and report on the Completion Form how you will use your new knowledge.

To earn continuing education credit, you must complete the learning assessment by April 30, 2029.

Program History and CE Information

Content origination date: November 2022
End date: April 30, 2029.

1
Subscribers Ratings
1
CONTINUING EDUCATION
PDH: 0.5
ASHA CEU*: 0.05
COURSE DETAILS
Item #(s): PD102882
Available Through: April 30, 2029